Literature

Articles and book chapters

Marwitz L, Tetens G, Søndergaard JO, Bülow S, Witt IN. Røntgenundersøgelse af mandiblen ved familiær colonpolyposis. Dan Dent J 1983; 87: 517-18.

Bülow S, Søndergaard JO, Witt IN, Larsen E, Tetens G. Mandibular osteomas in familial polyposis coli. Dis Colon Rectum 1984; 27: 105-08. Parallelpublikation: Panorama-tomografi af mandiblen ved familiær colonpolypose. Ugeskr Læger 1984; 146: 3109-10.

Danes BS, Alm T, Bülow S, Svendsen LB. In vitro family studies of heritable colon cancer. I: Lynch P, Lynch H, eds: Colon Cancer Genetics. Van Nostrand Reinhold Co., New York, 1984.

Bülow S. The Danish Polyposis Register. A description of the methods of detection and evaluation of completeness. Dis Colon Rectum 1984; 27: 351-55.

Bülow S. Colorectal polyposis syndromes. Scand J Gastroenterol 1984; 19: 289-93.

Bülow S. The risk of developing rectal cancer after colectomy and ileorectal anastomosis in Danish patients with polyposis coli. Dis Colon Rectum 1984; 27: 726-29.

Bülow S, Lauritsen KB, Johansen Aa, Svendsen LB, Søndergaard JO. Gastroduodenal polyps in familial polyposis coli. Dis Colon Rectum 1985; 28: 90-93.

Nielsen KB, Bülow S, Tommerup N. Chromosomal studies in familial polyposis coli. Cancer Genet Cytogen 1985; 17: 355-58.

Svendsen LB, Lauritsen KB, Bülow S, Danes BS. Increased in vitro tetraploidy: A possible biomarker of non-heritable colorectal cancer? Scand J Gastroenterol 1985; 20: 1110-14.

Bülow S. Clinical features in familial polyposis coli. Dis Colon Rectum 1986; 29: 102-07.

Bülow S, Holm NV, Hauge M. The incidence and prevalence of familial polyposis coli. Scand J Soc Med 1986; 14: 67-74.

Bülow S, Holm NV, Søndergaard JO, Witt IN, Tetens G. Mandibular osteomas in unaffected sibs and children of patients with familial polyposis coli. Scand J Gastroenterol 1986; 21: 744-48.

Pandey JP, Ebbesen P, Bülow S, Svendsen LB, Fudenberg HH. IgG heavy chain (Gm) allotypes in familial polyposis coli. Am J Hum Genet 1986; 39: 133-36.

Søndergaard JO, Bülow S, Järvinen H, Wolff J, Witt IN, Tetens G. Dental anomalies in familial adenomatous polyposis. Acta Odont Scand 1987; 45: 61-63.

Bülow S, Kirkegaard P. Ileo-poucho-anal anastomosis after previous failure of a straight ileoanal anastomosis. Acta Chir Scand 1987; 153: 463-64.

Bülow S. Incidence of associated diseases in familial polyposis coli. Sem Surg Onc 1987; 3: 84-87.

Bülow S. Tarmpolypper. I: Vejlsgaard R, ed.: Medicinsk Årbog 1987. Munksgaard, København, 1987.

Bülow S, Olsen PR, Hage E. Peutz-Jeghers syndrom. En oversigt og to egne tilfælde. Ugeskr Læger 1988; 150: 135-38.

Bülow S, Olsen PS, Poulsen SS, Kirkegaard P. Is epidermal growth factor involved in development of duodenal polyps in familial polyposis coli? Am J Gastroenterol 1988; 83: 404-06.

Bülow S, Holm NV, Mellemgaard A. Papillary thyroid carcinoma in Danish patients with familial adenomatous polyposis. Int J Colorectal Dis 1988; 3: 29-31.

Jagelman D, DeCosse JJ, Bussey HJR & The Leeds Castle Polyposis Group. Upper gastrointestinal cancer in familial adenomatous polyposis. Lancet 1988; 1149-51.

Johansen C, Svendsen LB, Johansen Aa, Bülow S. Juvenil polypose. Ugeskr Læger 1988; 150: 2792-94.

Garber JE, Li FP, Kingston JE, Krush AJ, Strong L, Finegold MJ, Bertario L, Bülow S, Fillipone A, Gedde-Dahl T Jr, Järvinen HJ. Hepatoblastoma and familial adenomatous polyposis. J Natl Cancer Inst 1988; 80: 1626-28.

Berk T, Bülow S, Cohen Z, DeCosse JJ, Dozois RR, Hawley PR, Jagelman DG, Järvinen HJ, Macrae FA. Surgical aspects of familial adenomatous polyposis. Int J Colorectal Dis 1988; 3: 1-16.

Bülow S. Familial adenomatous polyposis. Ann Med 1989; 21: 299-307.

Mogensen AM, Bülow S, Hage E. Duodenal adenomas in familial adenomatous polyposis: their structure and cellular composition with particular attention to endocrine hyperplasia. Virchows Archiv A Pathol Anat 1989; 414: 315-9.

Mogensen AM, Hage E, Bülow S. Electron microscopic studies of endocrine hyperplasia in duodenal adenomas in familial adenomatous polyposis. Virchows Archiv A Pathol Anat 1989; 414: 321-4.

Myrhøj T, Bülow S, Mogensen AM. Multiple adenomas in terminal ileum 25 years after restorative proctocolectomy for familial adenomatous polyposis. Dis Colon Rectum 1989; 32: 618-20.

Kirkegaard P, Bülow S, Olsen PS, Stadil F. The first year with a J-pouch. A prospective evaluation. Int J Colorectal Dis 1990; 5: 148-50.

Bülow S, Søndergaard JO, Moesgaard F. Familiær adenomatøs polypose. Ugeskr Læg 1990; 152: 2628-32.

Bülow S. Extracolonic manifestations of familial adenomatous polyposis. I: Herrera L, ed.: Familial Adenomatous Polyposis. Alan R Liss, Inc, New York, 1990.

Bülow S. Surveillance of Danish families with adenomatous polyposis. Results of the Danish Polyposis Register. I: Utsunomiya J, Lynch HT, eds.: Hereditary Colorectal Cancer. Springer Verlag, Tokyo, 1990.

Olsen PS, Bülow S, Jørgensen PN, Poulsen SS, Nexø E. Gastrointestinal regulatory peptides in familial polyposis coli. Digestion 1990; 46:228-32.

Johansen C, Bitsch M, Bülow S. Fertility and pregnancy in women with familial adenomatous polyposis. Int J Colorectal Dis 1991; 5: 203-6.

Bülow S. Diagnosis of familial adenomatous polyposis. World J Surg 1991; 15: 41-6.

Bernstein IT, Bülow S, Mauritzen K. Hepatoblastoma in two cousins in a family with adenomatous polyposis. Dis Colon Rectum 1992; 35:373-4.

Bisgaard ML, Bülow S, Winther K, Eiberg H, Niebuhr E, Mohr J. Præklinisk og prænatal diagnostik af familiær adenomatøs polypose. Ugeskr Læger 1992; 154: 921-4.

De Cosse JJ, Bülow S, Neale K, Järvinen H, Alm T, Hultcrantz R, Moesgaard F, Costello C & The Leeds Castle Polyposis Group. Rectal cancer risk in patients treated for familial adenomatous polyposis. Br J Surg 1992; 79: 1372-5.

Bülow S, Burn J, Neale K, Northover J, Vasen HFA. The establishment of a polyposis registry. Int J Colorectal Dis 1993; 8: 34-8.

Spigelman AD, Talbot I, Penna C, Nugent KP, Phillips RKS, Costello C, DeCosse JJ, The Leeds Castle Polyposis Group (Upper Gastrointestinal Committee). Evidence for adenoma-carcinoma sequence in the duodenum of patients with familial adenomatous polyposis. J Clin Pathol 1994; 47: 709-10.

Svendsen LB, Bisgaard ML, Gustafsen J, Bülow S & Stadil F. Serum-gastrin values in patients with familial adenomatous polyposis. Dis Colon Rectum 1994; 37: 22-25.

Bisgaard ML, Fenger K, Bülow S, Niebuhr E, Mohr J. Familial adenomatous polyposis (FAP): Frequency, penetrance, and mutation rate. Human Mutation 1994; 3: 121-25.

Mynster, T, Hultberg B, Bülow S. Multiple lymphomatous polyposis of the colon. Scand J Gastroent 1994; 29: 545-49.

Pedersen IR, Hartvigsen A, Hansen BF, Toftgaard C, Konstantin-Hansen K, Bülow S. Management of Peutz-Jeghers Syndrome. Experience with patients from the Danish Polyposis Register. Int J Colorectal Dis 1994; 9: 177-9.

Bülow S, Myrhøj T. Arvelig koloncancer. Månedsskr Prak Lægegerning 1995; 73:1541-8.

Bülow S, Alm T, Fausa O, Hultcrantz R, Järvinen H, Vasen H & The DAF Project Group. Duodenal adenomatosis in familial adenomatous polyposis. Int J Colorectal Dis 1995; 10: 43-6.

Bülow S, Bülow C, Nielsen TF, Karlsen L, Moesgaard F. Centralized registration and treatment results in improved prognosis in familial adenomatous polyposis. Results from the Danish Polyposis Register. Scand J Gastroenterol 1995; 30:989-993. Parallelpublikation: Prognosen ved familiær adenomatøs polypose. Ugeskr Læger 1996; 158: 4188-90.

Burn J, Chapman PD, Bertario L, Bishop DT, Bülow S, Cummings J, Mathew J, Phillips R, Vasen H. The protocol for a European double-blind trial of aspirin and resistant starch in familial adenomatous polyposis: the CAPP study. Eur J Cancer 1995; 31A:1385-6.

Bülow S, Nielsen TF, Bülow C, Bisgaard ML, Karlsen L, Moesgaard F. The incidence rate of familial adenomatous polyposis. Results from the Danish Polyposis Register. Int J Colorectal Dis 1996;11: 88-91.

Bülow S. Danish registries of FAP and HNPCC. I: Baba, S, ed.: A new strategy for treatment of hereditary colorectal cancer. Churchill Livingstone Japan, Tokyo,1996.

Bülow S, Kronborg O. Prophylaxis against colorectal cancer. Scand J Gastroenterol, 1996; 31 Suppl 216:160-68.

Bülow S, Myrhøj T. Arvelig kolorektal cancer (leder). Ugeskr Læger 1996;158:2959.

Vasen HFA, Bülow S, Myrhøj T, Mathus-Vliegen L, Griffioen G, Buskens E, Taal BG, Nagengast F, Slors JFM & de Ruiter P. Decision analysis in the management of duodenal adenomatosis in familial adenomatous polyposis. Gut 1997; 40:716-9.

Bülow C, Bülow S & The Leeds Castle Polyposis Group. Is screening for thyroid carcinoma indicated in familial adenomatous polyposis? Int J Colorectal Dis 1997;12: 240-2.

Sewerin I, Bülow S. Dentomaksillofaciale aspekter ved familiær adenomatøs polypose. Tandlægebladet 1997; 101: 778-84.

Vasen HFA, Bülow S & The Leeds Castle Polyposis Group. Guidelines for the surveillance and management of FAP: a worldwide survey among 41 registries. Colorectal Disease 1999; 1: 214-21.

van Duijvendijk P, Vasen H, Bertario L, Bülow S, Kuipers JHC, Schouten WR, Guillem J, Taat CW, Slors JFM. The cumulative risk of developing polyps or malignancy at the ileal-pouch-anal anastomosis in patients with familial adenomatous polyposis. J Gastrointest Surg 1999; 3: 325-30.

Madsen TG, Juel K, Bülow S. Causes of death in familial adenomatous polyposis. Scand J Gastroenterol 1999; 34: 808-12.

Bülow C, Vasen H, Järvinen H, Björk J, Bisgaard ML, Bülow S. Ileorectal anastomosis is appropriate for a subset of patients with familial adenomatous polyposis. Gastroenterology 2000; 119: 1454-60.

Knudsen AL, Bülow S. Desmoid tumor ved familiær adenomatøs polypose. Ugeskr Læger 2000; 162: 5628-31.

Bülow S. Sulindac and tamoxifen in the treatment of desmoid tumours in patients with familial adenomatous polyposis. Short note. Colorectal Disease 2001, 3: 266-7.

Vasen H, Duijvendijk P, Buskens E, Bülow C, Björk J, Järvinen H, Bülow S. Decision analysis in the surgical treatment of familial adenomatous polyposis. A Dutch-Scandinavian collaborative study including 659 patients. GUT 2001; 49: 231-5.

Knudsen AL, Bülow S. Desmoid tumour in familial adenomatous polyposis. A review of literature. Familial Cancer 2001; 1: 111-9.

Bülow S. Familial adenomatous polyposis: a decade of change. Cancer Futures 2002; 1: 140.

Sieber OM, Lamlum H, Crabtree MD, Rowan AJ, Barclay E, Lipton L, Hodgson S, Thomas HJW, Neale K, Phillips RKS, Farrington SM, Dunlop MG, Mueller HJ, Bisgaard ML, Bülow S, Fidalgo P, Albuquerque C, Scarano MI, Bodmer W, Tomlinson IPM, Heinimann K. Whole-gene APC deletions are a frequent cause of classical familial adenomatous polyposis, but not of attenuated polyposis or multiple colorectal adenomas. PNAS 2002, 99: 2954-8.

Ripa RR, Bisgaard ML, Bülow S, Nielsen FC. De novo mutations in familial adenomatous polyposis (FAP). Eur J Human Gen 2002; 10: 631-7.

Olsen KØ, Juul S, Bülow S, Järvinen H, Bakka A, Björk J, Öresland T, Laurberg S. Female fecundity before and after surgery for familial adenomatous polyposis (FAP). Br J Surg 2003; 90:227-31.

Bülow S. Kræft i tyktarmen. Patientinformationspjece. Kræftens bekæmpelse, 4. Udgave 2003.

Bülow S. Familiær adenomatøs polypose. FAP. Vejledende retningslinier for diagnose, behandling og kontrol. Polyposeregistret, H:S Hvidovre Hospital & Danish Colorectal Cancer Group. 2. Udgave. Hvidovre Hospital, 2003.

De Vos tot Nederveen Cappel W, Järvinen HJ, Björk J, Berk T, Griffioen G, Vasen HF. Worldwide survey among polyposis registries of surgical management of severe duodenal adenomatosis in familial adenomatous polyposis. Br J Surg 2003; 90: 705-10.

Bülow S. Results of national registration of familial adenomatous polyposis. Gut 2003; 52: 742-6. Parallelpublikation: Familiær adenomatøs polypose. Resultater fra Polyposeregistret gennem 25 år. Ugeskr Læger 2004; 166: 2668-70.

Risum S, Bülow S. Doxorubicin treatment of an intra-abdominal desmoid in a patient with familial adenomatous polyposis. Colorectal Disease 2003; 5: 585-6.

Knudsen AL, Bisgaard ML, Bülow S. Attenuated familial adenomatous polyposis (AFAP). A review of the literature. Familial Cancer 2003; 2: 43-55.

Neale K & Bülow S. Origins of the Leeds Castle Polyposis Group. Familial Cancer 2003; 2 (Suppl. 1), 1-2.

Penninga L, Svendsen LB, Bülow S. Duodenal adenomer ved familiær adenomatøs polypose. Ugeskr Læger 2004; 166: 4585-8

Bisgaard ML, Ripa R, Knudsen AL, Bülow S. Familial adenomatous polyposis patients without identified APC germline mutation have a severe phenotype. Gut 2004; 53: 266-70.

Bülow S, Björk J, Christensen IJ, Fausa O, Järvinen H, Moesgaard F, Vasen H and the DAF Study Group. Duodenal adenomatosis in familial adenomatous polyposis. Gut 2004; 53: 381-6.

Bisgaard ML, Ripa RS, Bülow S. Mutation analysis of the adenomatous polyposis coli (APC) gene in Danish Patients with familial denomatous polyposis (FAP). Hum Mutat 2004; 23: 522.

Penninga L, Svendsen LB, Kirkegaard P, Bülow S. Pancreasbevarende total duodenektomi ved familiær adenomatøs polypose. Ugeskr Læger 2004; 166: 4588-91.

Bernstein I, Bülow S. Arvelig kolorektal cancer. Ugeskr Læg 2005, 167: 4159-62.

Bülow S, Bernstein I. What is a genetic register? I: Macrae F & Berk T, eds. Colorectal cancer runs in the family. 2005.

Bernstein I, Bülow S. Arvelig kolorektal cancer. Ugeskr Læger 2005;167:4159-62.

Bülow S, Berk T, Neale K. The history of familial adenomatous polyposis. Fam Cancer 2006; 5: 213-20.

Gallagher MC, Phillips PKS, Bülow S. Surveillance and management of upper gastrointestinal disease in familial adenomatous polyposis. Familial Cancer 2006; 5: 263-73.

Sunde LEM, Bülow S, Bernstein IT. Familiær kolorektal cancer. Ugeskr Læg 2006; 168: 2369-73.

Bisgaard ML, Bülow S. Familial adenomatous polyposis (FAP): Genotype correlation to FAP phenotype with osteomas and sebaceous cysts. Am J Med Genet 2006; 140 A: 200-4.

Vasen HFA, Möslein G, Alonso A, Aretz S, Bernstein I, Bertario L, Blanco I, Bülow S, Burn J, Capella G, Colas C, Engel C, Frayling I, Friedl W, Hes FJ, Hodgson S, Mecklin JH-P, Møller P, Myrhøj T, Nagengast F, Parc Y, Ponz de Leon M, Renkonen-Sinisalo L, Sampson JR, Stormorken A, Tejpar S, Thomas H, Wijnen J. Guidelines for the clinical management of familial adenomatous polyposis (FAP). Gut, 2008; 57: 704-13.

Bülow S. Ileoanal pouchkirurgi (leder). Ugeskr Læger 2008;170:1719.

Walker LR, Bülow S. Proktokolektomi med ileoanal J-pouch. Postoperativt forløb og langsigtet funktion. Ugeskr Læger 2008;1721-5.

Bülow S, Bülow C, Björk J, Järvinen H, Vasen HFA, Christensen IJ. Colectomy and ileorectal anastomosis is still an option in selected patients with familial adenomatous polyposis. Dis Colon Rectum 2008; 51: 1318-23.

Bülow S. FAP. Familiær adenomatøs polypose. Information for polyposepatienter og deres familie. Eds: Holten I, Munk TB, Olsen T. 3. Udgave. Kræftens Bekæmpelse, 2008, og www.cancer.dk

Bülow S. Familiær adenomatøs polypose. FAP. Vejledende retningslinier for diagnose, behandling og kontrol. Polyposeregistret, Hvidovre Hospital & Danish Colorectal Cancer Group. 3. Udgave. Hvidovre Hospital, 2009.

Vasen HFA, Möslein G, Alonso A, Aretz S, Bernstein I, BertarioL, Blanco I, Bülow S, Burn J, Capella G, Colas C, Engel C, Frayling I, Rahner N, Hes FJ, Hodgson S, Mecklin J-P, Møller P, Myrhøj T, Nagengast F, Parc Y, Ponz de Leon M, Renkonen-Sinisalo L, Sampson JR, Stormorken A, Tejpar S, Thomas H, Wijnen J, Lubinski J, Järvinen H, Claes E, Heinimann K, Karagiannis JA, Lindblom A, Dove-Edwin I, Müller H. Recommendations to improve identification of hereditary and familial cancer in Europe. Fam Cancer 2009; 9: 109-15

Nieuwenhuis MH, Bülow S, Björk J, Järvinen H, Bülow C, Bisgaard ML, Vasen HFA. Genotype predicting phenotype in familial adenomatous polyposis: a practical application to the choice of surgery. Dis Colon Rectum 2009; 52: 1259-63.

Knudsen AL, Bülow S, Tomlinson I, Möslein G, Heinimann K, Christensen IJ, Aretz S, Berk T, Bertario L, Bisgaard ML, Kerner-Hanusch J, Macrae F, Neale K, Ponz de Leon M, Rozen P, Spigelman A. Attenuated familial adenomatous polyposis (AFAP). Results from an international collaborative study. Colorectal Dis 2010; 12: e243-9.

Bülow S, Bernstein I. Registries. I: Rodriguez-Bigas M, Cutait R, Lynch P, Tomlinson I, Vasen HFA, eds.: Hereditary Colorectal Cancer. Springer, MD Anderson Solid Tumor Oncology Series 2010.

Beggs AD, Hodgson SV, Vasen HFA, Möslein G, Alonso A, Aretz S, Bernstein I, Bertario L, Blanco I, Bülow S et al. Peutz-Jeghers syndrome: a systematic review of screening evidence and management recommendations. Gut 2010; 59: 975-86.

Burn J, Bishop DT, Chapman PD, Elliott F, Bertario L, Dunlop MG, Eccles D, Ellis A, Evans G, Fodde R, Maher ER, Möslein G, Vasen HF, Coaker J, Phillips RK, Bülow S, Mathers JC; for the International CAPP consortium. A randomized placebo-controlled trial of aspirin and/or resistant starch in young people with familial adenomatous polyposis. Cancer Prev Res 2011; 4: 655-65

Huang K, Guitierrez LP, Bülow S, Gallinger S, Castells A, Eagle CJ, Church JM. Clinical characteristics and outcomes in familial adenomatous polyposis patients with a long-term treatment of celecoxib: a matched cohort study. Fam Cancer 2011; 10: 303-8

Nieuwenhuis MH, Lefevre JH, Bülow S, Järvinen H, Bertario L, Parc Y, Vasen HFA. Family history, abdominal surgery, and APC mutation are risk factors for desmoid tumours in familial adenomatous polyposis: an international cohort study. Dis Colon Rectum 2011, 54: 1229-34

Bülow S. Familiær adenomatøs polypose. FAP. Vejledende retningslinier for diagnose, behandling og kontrol. Polyposeregistret, Hvidovre Hospital & Danish Colorectal Cancer Group. 4. Udgave. Hvidovre Hospital, 2012.

Bülow S. Mucosectomy and stapled pouch-anal anastomosis in familial adenomatous polyposis. Colorectal Dis 2012; 14: 68-70

Bülow S, Christensen IJ, Højen H, Björk J, Elmberg M, Järvinen H, Lepistö A, Nieuwenhuis M, Vasen H. Duodenal surveillance improves the prognosis after duodenal cancer in familial adenomatous polyposis. Colorectal Dis 2012; 14: 947-52.

Bülow S, Højen H, Buntzen S, Larsen, KL, Preisler L, Qvist N. Primary and secondary ileoanal pouch operation in familial adenomatous polyposis. Complications and long-term function. Colorectal Dis 2013; 15: 436-41.

Bülow S. Familiær adenomatøs polypose. Review. Ugeskr Læger 2013; 175:1335-9. 

Lynch PM, Burke CA, Phillips R, Morris JS, Slack R, Wang X, Liu J, Patterson S, Sinicrope FA, Rodriguez-Bigas MA, Half E, Bülow S, Latchford A, Clark S, Ross WA, Malone B, Hasson H, Richmond E, Hawk E. An international randomised trial of celecoxib versus celecoxib plus difluoromethylornithine in patients with familial adenomatous polyposis. Gut 2016;65:286-95.

Lynch PM, Morris JS, Wen S, Advani SM, Malone B, Ross W, Chang GJ, Rodriguez-Bigas M, Raju GS, Ricciardiello L, Iwama T, Rossi BM, Pellise M, Stoffel E, Wise PE, Bertario L, Saunders B, Burt R, Belluzi A, Ahnen D, Matsubara N, Bülow S, Jespersen N, Clark S, Erdman S, Markowitz A, Bernstein I, Syngal S, DeHasse N, Moeslein G. InSiGHT Polyposis Staging System (IPSS) and stage-specific interventions for rectal and colorectal polyposis. Gastrointest Endoscopy 2016; in press.